01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- New
- Charity type
- CIO
- Registered
- 4 February 2026
- Removed
- Not supplied
- Financial period
- Not supplied – Not supplied
- Latest income
- Not supplied
- Latest expenditure
- Not supplied
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 79 Carterhatch Lane, ENFIELD, Middlesex, EN1 4LA
Website recorded by the regulator: www.brucksyndrome.org (displayed as text)
02 Activities
What the charity does
We relieve the needs of individuals and families affected by Bruck Syndrome across the UK. We provide friendship and communication to reduce isolation , raise public awareness , and educate the medical profession. We also encourage research into treatments and disseminate findings to protect health and offer reassurance to those diagnosed and their carers.
03 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Northern Ireland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
- Geographic Area Type
- Country
- Geographic Area Description
- Scotland
- Parent Geographic Area Type
- Continent
- Parent Geographic Area Description
- Europe
- Welsh Ind
- No
04 Official extract
Charity Classification
- Classification Code
- 205
- Classification Type
- Who
- Classification Description
- Other Charities Or Voluntary Bodies
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 308
- Classification Type
- How
- Classification Description
- Sponsors Or Undertakes Research
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 203
- Classification Type
- Who
- Classification Description
- People With Disabilities
- Classification Code
- 301
- Classification Type
- How
- Classification Description
- Makes Grants To Individuals
- Classification Code
- 102
- Classification Type
- What
- Classification Description
- Education/training
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
- Classification Code
- 104
- Classification Type
- What
- Classification Description
- Disability
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
05 Official extract
Charity Event History
- Charity Name
- BRUCK SYNDROME
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2026-02-04T00:00:00
06 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 04 Feb 2026
- Charitable Objects
- THE OBJECTS ARE:TO RELIEVE THE NEED AND PROTECT THE HEALTH OF INDIVIDUALS, THEIR FAMILIES AND CARERS AFFECTED BY BRUCK SYNDROME ACROSS THE UK FOR THE PUBLIC BENEFIT BY:(1) PROVIDING ACTIVE COMMUNICATION BETWEEN THOSE DIAGNOSED WITH BRUCK SYNDROME OFFERING THEM FRIENDSHIP, REASSURANCE AND REDUCING THEIR SOCIAL ISOLATION. (2) RAISING AWARENESS OF BRUCK SYNDROME AND ITS IMPLICATIONS FOR THE INDIVIDUAL, THEIR FAMILY AND THE PUBLIC.(3) PROMOTING KNOWLEDGE, UNDERSTANDING AND ACKNOWLEDGEMENT OF BRUCK SYNDROME WITHIN THE MEDICAL PROFESSION AND SUPPORT SERVICES.(4) ENCOURAGING RESEARCH AND POTENTIAL TREATMENTS OF BRUCK SYNDROME AND ITS DISSEMINATION TO THE PUBLIC.
07 Official extract
Charity Policy
- Policy Name
- Trustee conflicts of interest policy and procedures
- Policy Name
- Bullying and harassment policy and procedures
- Policy Name
- Internal risk management policy and procedures
- Policy Name
- Complaints handling
- Policy Name
- Volunteer management
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Trustee expenses policy and procedures
- Policy Name
- Risk management
- Policy Name
- Campaigns and political activity policy and procedures
- Policy Name
- Investing charity funds policy and procedures
- Policy Name
- Internal charity financial controls policy and procedures
- Policy Name
- Serious incident reporting policy and procedures
- Policy Name
- Conflicting interests
- Policy Name
- Engaging external speakers at charity events policy and procedures
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Paying staff
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Investment
- Policy Name
- Social media policy and procedures
- Policy Name
- Complaints policy and procedures