01 Identity
Registration and reporting
- Registration status
- Registered
- Reporting status
- New
- Charity type
- CIO
- Registered
- 1 April 2026
- Removed
- Not supplied
- Financial period
- Not supplied – Not supplied
- Latest income
- Not supplied
- Latest expenditure
- Not supplied
- Gift Aid
- No
- Owns or uses land
- No
- In administration
- No
- Insolvent
- No
- CIO
- Yes
Public contact address: 4 PULTENEY AVENUE, BATH, BA2 4HH
02 Activities
What the charity does
We organise fundraising events to support research into MSMDS ACTA2, aiming to advance understanding and help develop effective treatments or a cure. We work across the UK to raise awareness, engage communities, and generate vital funding for scientific and medical progress.
03 Official extract
Charity Area Of Operation
- Geographic Area Type
- Region
- Geographic Area Description
- Throughout England And Wales
- Welsh Ind
- No
04 Official extract
Charity Classification
- Classification Code
- 302
- Classification Type
- How
- Classification Description
- Makes Grants To Organisations
- Classification Code
- 201
- Classification Type
- Who
- Classification Description
- Children/young People
- Classification Code
- 306
- Classification Type
- How
- Classification Description
- Provides Services
- Classification Code
- 103
- Classification Type
- What
- Classification Description
- The Advancement Of Health Or Saving Of Lives
- Classification Code
- 310
- Classification Type
- How
- Classification Description
- Other Charitable Activities
- Classification Code
- 307
- Classification Type
- How
- Classification Description
- Provides Advocacy/advice/information
- Classification Code
- 207
- Classification Type
- Who
- Classification Description
- The General Public/mankind
05 Official extract
Charity Event History
- Charity Name
- ACTA2 ALLIANCE UK
- Charity Event Order
- 1
- Event Type
- CIO registration
- Date Of Event
- 2026-04-01T00:00:00
06 Official extract
Charity Governing Document
- Governing Document Description
- CIO - FOUNDATION Registered 01 Apr 2026
- Charitable Objects
- THE PRESERVATION OF GOOD HEALTH AND THE RELIEF OF SICKNESS FOR THE PUBLIC BENEFIT AMONG INDIVIDUALS AFFECTED BY MULTISYSTEMIC SMOOTH MUSCLE DYSFUNCTION SYNDROME (MSMDS) AND OTHER ACTA2-RELATED DISORDERS BY:A) SUPPORTING AND PROMOTING RESEARCH FOR THE PUBLIC BENEFIT INTO THE CAUSES, PREVENTION, DIAGNOSIS AND TREATMENT OF MSMDS AND ACTA2-RELATED DISORDERS, AND PUBLISHING OR OTHERWISE DISSEMINATING THE USEFUL RESULTS OF SUCH RESEARCH;B) PROVIDING INFORMATION, ADVICE, EDUCATION AND ADVOCACY TO IMPROVE PUBLIC AND PROFESSIONAL AWARENESS OF MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING THE IMPORTANCE OF EARLY DIAGNOSIS, APPROPRIATE MONITORING AND WELL-MANAGED TREATMENT;C) OFFERING A SUPPORT NETWORK FOR INDIVIDUALS AND FAMILIES AFFECTED BY MSMDS AND ACTA2-RELATED DISORDERS, INCLUDING FACILITATING CONNECTIONS WITH MEDICAL SPECIALISTS AND RELEVANT ORGANISATIONS;D) ORGANISING AND PARTICIPATING IN CONFERENCES, FORUMS AND OTHER INITIATIVES THAT ADVANCE SCIENTIFIC UNDERSTANDING OF MSMDS AND ACTA2-RELATED VASCULAR DISEASES.
07 Official extract
Charity Policy
- Policy Name
- Financial reserves policy and procedures
- Policy Name
- Safeguarding vulnerable beneficiaries
- Policy Name
- Safeguarding policy and procedures
- Policy Name
- Social media policy and procedures
- Policy Name
- Conflicting interests