01 Identity
Scottish charity record
- OSCR charity number
- SC042709
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- Operations cover all or most of Scotland
- Volunteers
- 1-50 volunteers
- Staff
- 0
- Postcode
- G77 6TY
02 Purpose and work
What the charity exists to do
To provide a point of contact for newly diagnosed patients and their families and to ensure up-to-date information on PNH is available for all patients. PNH information packs are provided to all haematology departments throughout Scotland as well as contact details for PNH Scotland. Meetings are held quarterly to provide an opportunity for patients to talk and ask questions in-person.
Charitable purposes
- the advancement of education
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- People with disabilities or health problems
Activities
- It carries out activities or services itself
Constitutional objectives
The charity?s objectives (the objectives') are to raise awareness of PNH and advance the education of patients, families, interested health professionals and the general public into the condition. In particular, the charity will aim to provide useful information and a point of contact for newly diagnosed PNH patients.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 March 2025 | £1,826 | £136 | 0 | 15 December 2025 |
| 31 March 2024 | £3,655 | £90 | 0 | 3 December 2024 |
| 31 March 2023 | £208 | £50 | 0 | 4 November 2023 |
| 31 March 2022 | £108 | £50 | 0 | 3 December 2022 |
| 31 March 2021 | £258 | £360 | 0 | 18 December 2021 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- 64 Colonsay Drive, Newton Mearns, East Renfrewshire
- Website supplied to OSCR
- pnhscotland.org.uk
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.