01 Identity
Scottish charity record
- OSCR charity number
- SC044781
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- Scotland and other parts of the UK
- Volunteers
- 1-50 volunteers
- Staff
- 0
- Postcode
- KA22 8HP
02 Purpose and work
What the charity exists to do
We provide support emotionally, financially and practically to families who are affected by MECP2 Duplication Syndrome, helping to reduce feelings of isolation and exclusion. We raise awareness of MECP2 Duplication Syndrome and work with other similar Charities and organisations worldwide. We promote and Support research into MECP2 Duplication Syndrome which could lead to treatments which could enhance the lives of those affected with the syndrome. A UK site is opening soon to trail a potential drug. Our Charity is growing and developing for the long term benefit of our Community. We hold Family Day Conferences for our families and they receive all the up to date information from the scientists and experts on the condition. We also provide grants and hold meet ups and fun days out to the zoo and other venues. At our meet ups, face to face support is very valuable and the families spending time together is wonderful for sharing advice, knowledge, tips and information.
Charitable purposes
- the advancement of education
- the advancement of health
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- Children or young people
- People with disabilities or health problems
Activities
- It makes grants, donations, loans, gifts or pensions to individuals
- It carries out activities or services itself
Constitutional objectives
1. The relief of those in need by reason of ill health & disability by providing non-medical support to UK patients, their families and carers with a connection to the condition. 2. The advancement of education and the promotion of diversity and equality by raising awareness of the condition and its treatment. 3. Advancing the education of the public and of the medical professions concerning the condition, the causes, prevention and treatment. 4. The advancement of health by supporting research projects worldwide with funds/donations to help find further treatment to improve quality of life.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 March 2025 | £9,978 | £9,484 | 0 | 10 December 2025 |
| 31 March 2024 | £15,500 | £15,777 | 0 | 19 December 2024 |
| 31 March 2023 | £1,319 | £4,506 | 0 | 22 December 2023 |
| 31 March 2022 | £1,921 | £770 | 0 | 31 December 2022 |
| 31 March 2021 | £1,024 | £1,007 | 0 | 23 December 2021 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- 34 Montgomerie Street, Ardrossan, North Ayrshire
- Website supplied to OSCR
- www.mecp2duplicationuk.org.uk
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.