01 Identity
Scottish charity record
- OSCR charity number
- SC045465
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- UK and overseas
- Volunteers
- 1-50 volunteers
- Staff
- 2
- Postcode
- AB33 8LP
OSCR note: This charity changed it's name from Teddington Trust (SCIO) to Action for XP. The charity was registered with the name Teddington Trust (SCIO) 6 March 2015 - 8 July 2022.
02 Purpose and work
What the charity exists to do
Action for XP is established for charitable purposes only, and in particular, the objects are: To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. To promote education and awareness both within the XP community and externally within the professional community and general population.
Charitable purposes
- the advancement of education
- the advancement of health
- the promotion of equality and diversity
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- People with disabilities or health problems
Activities
- It makes grants, donations, loans, gifts or pensions to individuals
- It carries out activities or services itself
Constitutional objectives
4 The organisation is established for charitable purposes only, and in particular, the objects are: 4.1 To provide a comprehensive support network for individuals and families affected by the ultra-rare disease, xeroderma pigmentosum (XP), providing equitable access to our charitable services throughout the UK. Providing both practical and emotional support to aid the improvement to the quality of life for individuals and families affected by XP, through all life stages of living with the disease. 4.2 To further conditions for families in underserved regions internationally by engaging in proactive collaboration and knowledge sharing with our peers internationally. 4.3 To further scientific understanding of xeroderma pigmentosum and work with the international scientific community to progress research and communicate that research to our community. 4.4 To promote education and awareness both within the XP community and externally within the professional community and general population. 4.5 The promotion of inclusivity, diversity, equality, and awareness, operationally and across our activities
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 March 2025 | £24,952 | £54,859 | 2 | 24 November 2025 |
| 31 March 2024 | £24,840 | £11,635 | 2 | 20 December 2024 |
| 31 March 2023 | £66,164 | £23,839 | 2 | 20 October 2023 |
| 31 March 2022 | £5,428 | £6,149 | 2 | 17 October 2022 |
| 31 March 2021 | £9,226 | £849 | 2 | 27 January 2022 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- Westfield, Cushnie, Alford, Aberdeenshire
- Website supplied to OSCR
- www.actionforxp.org
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.