OSCR Scottish charity profile

Cerebrospinal Fluid Leak Association

Known as CSF Leak Association, CSF Leak Association (Scotland)

ActiveCharity number SC046319
Registered5 February 2016
Main locationHighland
Legal formSCIO (Scottish Charitable Incorporated Organisation)

01 Identity

Scottish charity record

Snapshot 25 August 2026
OSCR charity number
SC046319
Status
Active
Regulatory type
Standard
Designated religious body
No
Geographical spread
Scotland and other parts of the UK
Volunteers
1-50 volunteers
Staff
0
Postcode
G2 1BP

02 Purpose and work

What the charity exists to do

We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free from harm.

Charitable purposes

  • the advancement of health

Beneficiaries

  • People with disabilities or health problems

Activities

  • It carries out activities or services itself

Constitutional objectives

To raise the profile and promote awareness of Cerebrospinal Fluid Leaks (with a particular focus on spinal Cerebrospinal Fluid Leaks), hereafter within these purposes referred to as 'CSF Leaks', in all areas of society, including the general public, the media and the medical profession, for the public benefit. To improve, for the public benefit, the general availability of and access to information and resources relating to the causes, symptoms, diagnosis and treatment of CSF Leaks. To advance, for the public benefit, understanding of the causes, symptoms, diagnosis and treatment of CSF Leaks through research, education, fora, publications, practical advice, and other appropriate means and services. To campaign for, encourage and support positive change and advancements within government, the four national health services within the UK, other relevant health care providers (including those outwith the UK), other relevant organisations and general society that address the various issues faced by people suffering or suspected to be suffering from CSF Leaks, their families and supporters. To work to support and improve the availability of and access to investigatory tests and treatments required by people suffering or suspected to be suffering from CSF Leaks. To encourage and support the establishment, development and furtherance of organisations and initiatives the aim(s) of which are to a) undertake and/or facilitate research into CSF Leaks (incl. their underlying causes and resultant effects) and/or b) support people suffering or suspected to be suffering from CSF Leaks, their families and supporters. The promotion of such other similar charitable purposes as may from time to time be determined.

03 Annual returns

Income and expenditure history

5 periods
Year endIncomeExpenditureStaffReturn received
31 March 2025£43,401£15,474021 November 2025
31 March 2024£26,665£17,678011 November 2024
31 March 2023£25,454£4,579015 November 2023
31 March 2022£4,394£13,170028 October 2022
31 March 2021£15,449£5,670011 October 2021

Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.

04 Contact record

Principal office or trustees address

Address supplied to OSCR
Clyde Offices, 2nd Floor, 48 West George Street, Glasgow
Website supplied to OSCR
www.csfleak.uk
Parent charity
Not supplied

No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.

05 Provenance

Source for this profile

© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.