01 Identity
Scottish charity record
- OSCR charity number
- SC046319
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- Scotland and other parts of the UK
- Volunteers
- 1-50 volunteers
- Staff
- 0
- Postcode
- G2 1BP
02 Purpose and work
What the charity exists to do
We are dedicated to supporting CSF leak patients, working to ensure every cerebrospinal fluid (CSF) leak is diagnosed promptly, treated effectively, and prevented wherever possible to reduce suffering and avoid serious complications. CSF leaks are curable, yet too often missed or misdiagnosed. We empower patients to seek appropriate healthcare and treatment through practical advice, support, and advocacy. We campaign for equitable and timely access to holistic care for all CSF leak patients. By collaborating with leading experts and those with lived experience, we raise awareness, advance understanding through education, and drive progress by supporting research. Our aim is simple: to help as many people as possible access best-practice care, achieve a cure, and return to living pain free and free from harm.
Charitable purposes
- the advancement of health
Beneficiaries
- People with disabilities or health problems
Activities
- It carries out activities or services itself
Constitutional objectives
To raise the profile and promote awareness of Cerebrospinal Fluid Leaks (with a particular focus on spinal Cerebrospinal Fluid Leaks), hereafter within these purposes referred to as 'CSF Leaks', in all areas of society, including the general public, the media and the medical profession, for the public benefit. To improve, for the public benefit, the general availability of and access to information and resources relating to the causes, symptoms, diagnosis and treatment of CSF Leaks. To advance, for the public benefit, understanding of the causes, symptoms, diagnosis and treatment of CSF Leaks through research, education, fora, publications, practical advice, and other appropriate means and services. To campaign for, encourage and support positive change and advancements within government, the four national health services within the UK, other relevant health care providers (including those outwith the UK), other relevant organisations and general society that address the various issues faced by people suffering or suspected to be suffering from CSF Leaks, their families and supporters. To work to support and improve the availability of and access to investigatory tests and treatments required by people suffering or suspected to be suffering from CSF Leaks. To encourage and support the establishment, development and furtherance of organisations and initiatives the aim(s) of which are to a) undertake and/or facilitate research into CSF Leaks (incl. their underlying causes and resultant effects) and/or b) support people suffering or suspected to be suffering from CSF Leaks, their families and supporters. The promotion of such other similar charitable purposes as may from time to time be determined.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 March 2025 | £43,401 | £15,474 | 0 | 21 November 2025 |
| 31 March 2024 | £26,665 | £17,678 | 0 | 11 November 2024 |
| 31 March 2023 | £25,454 | £4,579 | 0 | 15 November 2023 |
| 31 March 2022 | £4,394 | £13,170 | 0 | 28 October 2022 |
| 31 March 2021 | £15,449 | £5,670 | 0 | 11 October 2021 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- Clyde Offices, 2nd Floor, 48 West George Street, Glasgow
- Website supplied to OSCR
- www.csfleak.uk
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.