01 Identity
Scottish charity record
- OSCR charity number
- SC046480
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- UK and overseas
- Volunteers
- 1-50 volunteers
- Staff
- 0
- Postcode
- DD2 2AY
02 Purpose and work
What the charity exists to do
PC Project Europe connects patients, researchers, physicians, and industry partners to help those who suffer from the debilitating effects of PC. We are a subsidiary of our parent company the PC Project, based in the United States. We engage with patients and professionals, offer support to patients and their loved ones, and partner with scientists and industry to advance PC research and drug development. We also engage in fundraising activities to support these activities. Pachyonychia Congenita is one of nearly 7,000 rare diseases, 2,000–3,000 of which are rare genetic skin diseases. Together with the PC Project and with the work of our international consortium of professionals, the participation of genetically confirmed patients in our registry, and the support of many givers, we have helped educate the world about PC and are on the path to effective treatments for patients.
Charitable purposes
- the advancement of education
- the advancement of health
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- People with disabilities or health problems
Activities
- It makes grants, donations, loans, gifts or pensions to individuals
- It makes grants, donations or gifts to organisations
- It carries out activities or services itself
Constitutional objectives
The organisation's purposes are: To advance education and health by: (a) promoting the study of pachyonychia congenita and improving the standard of knowledge of the means of prevention, diagnosis and treatment of pachyonychia congenita. (b) initiating, encouraging, supporting (whether financially or otherwise) and carrying out research and investigations into pachyonychia congenita and the treatment or cure of pachyonychia congenita and related disorders. (c) providing access to genetic testing and registration in respect of pachyonychia congenita and other rare genetic diseases. (d) organising and encouraging a community of professionals including physicians and scientists to collaborate in efforts to find effective treatments for pachyonychia congenita and related disorders. To relieve those in need due to ill health through the provision of care, support and practical assistance to sufferers of pachyonychia congenita and related disorders and assisting sufferers of pachyonychia congenita and related disorders to live better, more fulfilled lives through the facilitation of a range of initiatives including those directed towards social inclusion.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 30 April 2025 | £16,605 | £54,547 | 0 | 18 January 2026 |
| 30 April 2024 | £6,515 | £6,483 | 0 | 21 January 2025 |
| 30 April 2023 | £18,735 | £306 | 0 | 21 January 2024 |
| 30 April 2022 | £7,349 | £216 | 0 | 27 January 2023 |
| 30 April 2021 | £5,615 | £216 | 0 | 4 January 2022 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- c/o Robyn Hickerson, Flat 12 2a Elm Street, Dundee
- Website supplied to OSCR
- www.pachyonychia.org
- Parent charity
- Pachyonychia Congenita Project
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.