01 Identity
Scottish charity record
- OSCR charity number
- SC047408
- Status
- Not Submitted
- Regulatory type
- Cross Border
- Designated religious body
- No
- Geographical spread
- UK and overseas
- Volunteers
- Not supplied
- Staff
- 8
- Postcode
- BD18 9GE
02 Purpose and work
What the charity exists to do
Charitable purposes
- the advancement of education
- the advancement of health
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- Children or young people
- People with disabilities or health problems
- Other defined groups
- Other charities or voluntary bodies
Activities
- It makes grants, donations, loans, gifts or pensions to individuals
- It carries out activities or services itself
Constitutional objectives
Objects The Association is established to: a) Preserve and protect the health and promote the welfare of persons affected by all types of Neuronal Ceriod Lipofuscinosis (NL) commonly known as Batten disease. b) To advance the education of the medical profession and the general public on the subject of Batten disease and its implications for the family. c) To promote research into the management of Batten disease and to publish the useful results thereof and to support organisations promoting research into Batten disease.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 August 2025 | £0 | £0 | 8 | Not supplied |
| 31 August 2024 | £438,139 | £419,965 | 8 | 26 May 2025 |
| 31 August 2023 | £540,139 | £601,373 | 8 | 24 May 2024 |
| 31 August 2022 | £545,653 | £554,602 | 8 | 6 June 2023 |
| 31 August 2021 | £635,015 | £308,938 | 8 | 13 May 2022 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- PO Box 379, Shipley
- Website supplied to OSCR
- www.bdfa-uk.org.uk
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.