01 Identity
Scottish charity record
- OSCR charity number
- SC047871
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- UK and overseas
- Volunteers
- 101-250 volunteers
- Staff
- 16
- Postcode
- EH2 4BB
02 Purpose and work
What the charity exists to do
The Foundation's key aims and objectives are: the advancement of health, the saving of lives and the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage, as a result of Motor Neuron Disease. for the purposes of benefitting the public, in particular, through education and medical research relating to Motor Neuron Disease. financial support, for individuals or family members of individuals suffering from Motor Neuron Disease. and for the benefit of one or more Charity or Charities as Trustees in their unfettered discretion may decide. or for the implementation or assistance in implementing any Charitable Purpose or purposes as the Trustees in their unfettered discretion may decide.
Charitable purposes
- the advancement of education
- the advancement of health
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- People with disabilities or health problems
Activities
- It makes grants, donations, loans, gifts or pensions to individuals
- It makes grants, donations or gifts to organisations
Constitutional objectives
6.1 The SCIO shall hold the Trust Fund for Charitable Purposes exclusively. declaring without prejudice to the foregoing generality that the Trustees may apply the Trust Fund exclusively for any or all of the following Charitable Purposes namely: 6.1.1 the advancement of health, the saving of lives and the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage, as a result of Motor Neurone Disease. 6.1.2 for the purposes of benefitting the public and in particular, through education and medical research relating to Motor Neurone Disease. 6.1.3 financial support, for individuals or family members of individuals suffering from Motor Neurone Disease. 6.1.4 the advancement of health and the saving of lives, for individuals suffering from Motor Neurone Disease. 6.1.5 by developing and assisting the treatment of individuals suffering from Motor Neurone Disease. 6.1.6 for the benefit of such one or more Charity or Charities as the Trustees in their unfettered discretion may decide. or 6.1.7 for the implementation or assistance in implementing any Charitable Purpose or purposes as the Trustees in their unfettered discretion may decide.
03 Annual returns
Income and expenditure history
| Year end | Income | Expenditure | Staff | Return received |
|---|---|---|---|---|
| 31 December 2025 | £6,554,988 | £7,007,267 | 16 | 4 July 2026 |
| 31 December 2024 | £6,863,137 | £10,130,287 | 16 | 23 June 2025 |
| 31 December 2023 | £8,156,808 | £3,900,226 | 16 | 6 December 2024 |
| 31 December 2022 | £4,503,002 | £3,937,331 | 16 | 22 September 2023 |
| 31 December 2021 | £4,272,452 | £3,431,482 | 16 | 26 September 2022 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- 1st floor, 127 Rose Street South Lane, Edinburgh
- Website supplied to OSCR
- https://www.myname5doddie.co.uk/
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.