01 Identity
Scottish charity record
- OSCR charity number
- SC048708
- Status
- Active
- Regulatory type
- Standard
- Designated religious body
- No
- Geographical spread
- UK and overseas
- Volunteers
- 1-50 volunteers
- Staff
- 0
- Postcode
- PA75 6PX
02 Purpose and work
What the charity exists to do
To provide help, advice and assistance to families in the UK and across the world affected by the rare genetic disease Aarskogg Syndrome. We have regular online meetings worldwide, a Family Friday where anyone can be contacted (with translators where needed) and discussions and support to families.
Charitable purposes
- the relief of those in need by reason of age, ill-health, disability, financial hardship or other disadvantage
Beneficiaries
- People with disabilities or health problems
Activities
- It carries out activities or services itself
Constitutional objectives
The company's objects are: To provide help, advice and assistance to families in the UK and across the world affected by the rare genetic disease Aarskogg Syndrome.
03 Annual returns
Income and expenditure history
| Year end | Total income | Donations | Charitable activities income | Trading income | Investment income | Other income | Total expenditure | Raising funds | Charitable activities spending | Other spending | Staff | Return received |
|---|---|---|---|---|---|---|---|---|---|---|---|---|
| 28 February 2026 | £0 | £0 | £0 | £0 | £0 | £0 | £1,079 | £0 | £0 | £0 | 0 | 12 October 2026 |
| 28 February 2025 | £1,943 | £0 | £0 | £0 | £0 | £0 | £1,413 | £0 | £0 | £0 | 0 | 20 November 2025 |
| 28 February 2024 | £2,088 | £0 | £0 | £0 | £0 | £0 | £312 | £0 | £0 | £0 | 0 | 20 November 2024 |
| 28 February 2023 | £3,447 | £0 | £0 | £0 | £0 | £0 | £2,436 | £0 | £0 | £0 | 0 | 20 May 2024 |
| 28 February 2022 | £8,660 | £0 | £0 | £0 | £0 | £0 | £8,051 | £0 | £0 | £0 | 0 | 20 May 2024 |
Figures are those reported by the charity and supplied in the OSCR bulk download. Blank facts remain distinct from zero.
04 Contact record
Principal office or trustees address
- Address supplied to OSCR
- Wilton Villa, Breadalbane Street, Tobermory, Isle of Mull
- Website supplied to OSCR
- www.aarskogsyndromefoundation.co.uk
- Parent charity
- Not supplied
No direct external links on this profile. The official OSCR record and source documentation are available through BritDB’s dedicated source page.
05 Provenance
Source for this profile
© Crown Copyright and database right 2026. Contains information from the Scottish Charity Register supplied by the Office of the Scottish Charity Regulator and licensed under the Open Government Licence v.3.0. BritDB is an independent service and does not claim to be the Scottish Charity Register.