Brittle Bone Society (BBS)

Constitutional objectives

3 .1 The company's objects are to: (A) provide relief to people with osteogenesis imperfecta ('01') including by: (1) assisting them, their relatives and their carers (collectively the '01 Community') in maintaining contact with each other and exchanging information and experiences. (2) assisting the 01 Community in obtaining accurate information regarding 01. (3) providing information to the OI Community about available care and support, including by raising awareness of welfare and other benefits. (4) circulating relevant news and information (including by newsletters and social media channels) to the OI community. (B) advance research into the causes, inheritance and management of OI and related disorders and to publish the results of such research. (C) assist the OI Community in working alongside the medical profession, the development and delivery of treatments for OI and related disorders. (D) assist the or Community in working alongside the social services profession in developing and providing appropriate support services to the OI Community. (E) provide a forum for the OI Community to meet with healthcare and other professionals in order to discuss issues relating to OI and its treatment. (F) update the OI Community on the current state of research into or and provide access to appropriate medical specialists to help resolve specific problems. (G) make representations to government departments, agencies, local authorities and voluntary bodies in support to the OI Community. (H) assist in the education of government departments, agencies, local authorities, voluntary bodies and other charities to understand the needs of the or Community. (I) source, purchase, develop and provide for the maintenance of equipment for the use of the or Community. and (J) work and coordinate with other organisations (charitable, voluntary, governmental or otherwise) supporting those affected by rare bone disorders.